Pituitary Tumors – The Best Kept Secret In Medicine

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By Garni Barkhoudarian, M.D. and Sharmyn McGraw

brainStudies show that up to 1 in 5 adults may have a pituitary tumor or lesion. That’s ~20% of our population. The Pituitary Gland is The Master Gland, which sits at the base of our brain. Pituitary tumors can cause severe hormonal disorders, blindness and many other serious health problems. These tumors are mostly benign, but can act in an aggressive manner. In most cases they are treatable, but we lack current and accurate education among our medical communities as well as the public, this results in far too many patients to become disabled and even lose their lives simply because we lack proper awareness and education.

Historically, doctors were taught pituitary disease was rare, and as such, many patients with pituitary disorders remain undiagnosed. Patients are not getting a timely and/or accurate diagnosis. Pituitary tumors often present with common symptoms leading doctors to treat individual symptoms never getting to the root cause. Patients can go many years without a proper evaluation leading to many poor quality of life health concerns. Many common symptoms include: Obesity in the abdomen, diabetes, low sex drive, lack of menstrual cycles, abnormal hair growth, hair lose, abnormal growth as an adult, anxiety, depression, low energy, abnormal hormone levels, blindness, high blood pressure, heart disease and more. Not every patient has every symptom.

A small handful of subspecialist in neuro-endocrinology and neurosurgery strive to reeducate their colleagues as well as advocates helping to raise public awareness. Tumors often over produce the hormones:

Prolactinoma: High levels of prolactin causing infertility and sexual dysfunction

Cushing’s Disease: High levels of ACTH-causing elevated cortisol resulting in weight gain, diabetes mellitus and hypertension.

Acromegaly: High levels of growth hormone-causing increased tissue growth, diabetes mellitus, hypertension and cardiac abnormalities.

stressSome tumors are considered non-functioning; they don’t secrete a hormone but can cause headaches, blindness, hormone dysfunction and other serious health problems. These can be treated with a combination of surgical and medical therapy. Pituitary hormonal disorders can also, albeit rarely, affect children. This should be considered if a child presents with multiple generalized symptoms.

We need your help please help us raise awareness-it may save your life or the life of someone you love. http://pituitarysupportgroup.org/

Garni Barkhoudarian, M.D. Brain Tumor Center and Pituitary Disorders Program at Saint John’s Health Center, Santa Monica, CA,

Sharmyn McGraw, Patient Advocate, Newport Beach, CA

39 Comments

  1. Thank you so much for sharing this fascinating article with your readers. This is much needed information for some of us struggling with some of these seemingly unusual/unconnected symptoms. Awareness and education are critical! Keep up the good work 😉

  2. Hi,  I had one of the best kept secrets.  It was approx. 2″ in diameter, it had not affected my eyesight but I had numerous other health problems including heart, weight, bp, joints, feet and hands enlarged and swollen eyes.  I had surgery, gamma knife and sandostatin.  I still do not feel good even though my lab work is back to acceptable levels. I just thing it took a large toll on my body.  Would appreciate any info or comments.  I received my care at Mayo Clini in MN.

  3. Dear Kayla:I’m sorry to hear about your pituitary tumor. I’m always happy to help with current information whenever I can. Please email me at [email protected] Also if you ever need Dr. Kelly or Dr. Barkhoudarian at the Brain Tumor Center, to look over your MRI scans, they are always happy to do that for you at no charge.  I look forward to chatting with you soon,Sharmyn

  4. well I am a 31 year old woman and have cushings disease or had i guess you could say. I had to have a bilateral adrenelectomy because the tumor in my head was too small however they tried to remove it twice but no success. I have to take meds for the rest of my life to survive. Now a few years later I am told my acth levels are still high, so have to have another MRI but I guess my question is am I still overweight because of my acth levels or should I be able to lose weight easily. I gained a massive amount of weight with the cushings and haven’t had any success with losing it. I am planning on having the lap band done I am disgusted with being so big. If I don’t have to have another surgery I rather not but so far it seems like the only way to go back to being me again I am unhappy and unhealthy please help me!! Please respond to me at my email address which is [email protected]. I am not that great with the computer so the easiest way for me to receive your response is through email. Thanks for listening. D.M.

  5. Dear Dawn,I’m sorry to hear you are still having health concerns. Yes, many ACTH tumors
    can be very small, some even too small to see on the MRI. The diagnosis is
    confirmed strictly through hormone levels for these types of ACTH tumors. My
    ACTH tumor wasn’t seen on my MRI; however, I was one of the luck patients and
    Dr. Daniel Kelly my neurosurgeon was successful in finding the tumor at surgery
    and I’ve been in remission almost 13 years. There are many questions I need to
    ask you and I will email you on your person email, that way I can give you the
    best information I have from my personal years of experience as a patient advocates and
    hopefully help guide you to a better quality of life. Many patients live very
    well without adrenal glands but you really need to be seeing a neuro-endocrine
    expert. Unfortunately it is a sub-specialty field and there are only a small percent
    of endocrinologist that actually really understand and treat a large number of
    pituitary patients. But I’m happy to give you information to take back to your
    medical team and hopefully you will continue to improve your health. After 13
    years I feel great! I work out 6 days a week and do very well, but it took many
    years of dedication to my health, diet, exercise, and keeping myself focused on
    beating this disease. Recovery from Cushing’s can be very difficult even when
    the tumor has been removed completely, so you will need a little extra help
    since you don’t have adrenal glands and still have an active tumor. But with a
    combination of a healthy diet, I suggest mostly fresh foods, lots of
    vegetables, fruit, and lean protein, as well as an exercise program designed
    for you and a good medical team most patients make a full recovery.

    Sharmyn

     

  6. Thank you Len & Sharmyn for all your efforts on behalf of all of us Cushie’s! I have had two unsuccessful Transshenoidal Surgeries, and am currently taking the medication called Korlym. My blood sugar levels have lowered and are now residing in the normal ranges for the most part, and I’ve lost a bit of weight. My blood pressure has risen. My question and concerns are about the recovery stage. There is not much information out in regards to the recovery stage. I realize it’s a slow process  But what are the physical aspects? I am experiencing sever muscle spasms everywhere. Joint pains, terrible weakness in my muscles, my nausea is worse, my vision is still blurred. I haven’t gotten much relief from my symptoms. Every time I see my Endocrinologist, she is expecting me to feel wonderful and truthfully, I do not. I began treatment with the newly approved orphan drug in Sept. 2012. I am now taking the maximum dose of 1200 mg. I was hoping to get more information about what to expect in recoveryThanks for your interest and any thoughts you can give me.

  7. Hi Sharmyn thanks for your response. I regularly see my endocrinologist about every four months now he seems to be doing a good job of keeping track of my levels of acth. I get a blood test every time I see him and put it on ice. I am thankfull for my doctors especially my pcp for knowing what it was that I had he actually had someone with cushings before so he knew exactly what was going on. Though the process is so long just to get better, my endo sent me to Mt.Sinai for my transsphenoidal surgery because the dr there was an expert on the whole process the surgeon also told me he was successful with all the people he performed the surgery on. Unfortunately I was his problem child he said after two times and no success. Now after I have my MRI I guess we are gonna have to try again do you suggest I stick with the same surgeon or go elsewhere? I am confused about that! I just want this all done with and want to be me again I am very irritable and depressed all the time do you think that will go away after Im better? Thanks for listening talk to you soon. D.M.

  8. Hi Dawn, I’m sorry to hear all you have gone through. Dr. Barkhoudarian and
    Dr. Kelly will be happy to look over your records and give you their opinion
    about perhaps a third surgery. In December last year I met a patient who lives
    in TX and she had 2 failed pituitary surgeries for Cushing’s as well and
    started Korlym too. I am great friends with Kate Tully who is Korlym’s patient
    advocate-and the patients I know on Korylym are doing well. However, it’s best
    if you could have a successful surgery and not have to take medication. The
    patient came from TX to see Dr. Barkhoudarian and Dr, Kelly and she’s now finally in
    remission. But of course not everyone should take the risk of a third surgery but in her case Dr. Kelly decided it was a good option and thank goodness everything went well and he was able to remove all the ACTH cells and she is in remission and her pituitary gland should make a full recovery and in a few months start to function normal again. Her first 2 surgeries where done by a very skilled neurosurgeon who
    has been doing pituitary surgery for many years, but surgery is difficult and no surgeon that does a ot of pituitary surgeries can say they don’t have failures; therefore, it is always best to go to the high volume pituitary experts. Dr.
    Kelly and Barkhoudarian are doing over 200 pituitary surgeries a year and see
    many of the worst cases, so it can’t hurt to just see what their opinion of a third
    surgery would be. At least then you have something to compare when you decide
    what’s best for you. Please feel free to contact me directly if you have any questions. Hang in there, and I will keep all good thoughts for your health.[email protected]

  9. I was still wondering if high acth levels makes you overweight or gives you trouble losing it. I know the meds I take do not help I take prednisone and fludrocortisone and also does this acth have anything to do with making it hard to deal with stress because im always stressed out. I love my dr but sometimes I dont understand everything he says to me and I dont want to look stupid and keep asking him the same questions. I also wanted to know if I can have a baby and if I do will it be a high risk pregnancy, will the baby be ok since I take meds or should I not think about having a child.

  10. Dawn, you said you are on Korlym, correct? If you are
    Korlym, I need to talk to you because you should not be on steroids as well.
    This is in no way medical advice; however, Korlym is a drug used to block the
    receptors of Cortisol. Prednisone is a steroid so you typically would not take
    the two together. So I will have to understand why your doctor has prescribed
    you both of these medications before I can give you my suggestions. I would
    however suggest seeing Dr. Pejman Cohan, he’s a neuro-endocrinologist and only
    sees pituitary and neuro-endocrine patients. (310) 657-3030 he’s in Beverly
    Hills, CA and one of the top neuro-endocrine experts in the country. Most patients
    on Korlym are back to their normal weight once they are on a maintenance dose
    of the drug. Because the drug is blocking the majority of cortisol in your
    body, (but not all) you are not getting the effects of the high cortisol and
    most patients do lose the weight caused by the high cortisol because they are
    no long receiving it through receptors. ACTH by its self typically doesn’t
    cause excess weight gain. So this is my concern with your situation, because of
    course prednisone is just like cortisol in your body, but of course the Korlym
    would not block the prednisone in your body. So I will need to have more
    information but I highly recommend seeing Dr. Cohan. This is a link to several
    of our pituitary patient support group meetings and Dr. Cohan is speaking in
    many of the videos and they are very educational.

    http://www.youtube.com/user/Sharmyn411?feature=watch

  11. hello Sharmyn you must be confusing me with someone else I am not on korlym my body does not produce any cortisol I have no adrenal glands I had a bilateral adrenalectomy because they couldn’t get the tumor in my head. I had cushings and it was bad they I think I had all the symptoms by the time I had the surgery from night visions to hump back from muscle weakness to hair loss, sweats, acne, high blood pressure, obesity, craziness, bad temper, sleepless nights, the list could go on and on, by the end I could barely walk or even lift stuff. I never knew things like that could happen to a person I used to say or feel like the devil was inside me. I feel alot better now but not with my weight I feel unhealthy like I will never have the motivation to ever lose all this weight. 

  12. Well no wonder I was confused! Now things are making sense. LOL Yes, Dawn, it seems I had
    your situation confused with someone else-please forgive me…I get over 150
    emails a day so every once in a while I get confused. But never the less, the
    videos of our support group are excellent and I hope you check them out. I
    think you will find them very helpful. As well, a couple suggestions I can make
    for you to discuss with your medical team: In some cases I have seen patients
    not lose weight because their hormone replacement (steroid) is actually too
    low, and patients actually feel better when they have a little more because they
    get more movement and overall feel better and the weight stabilizes. Of course
    then there are those patients that have too much hormone replacement and of
    course they don’t lose weight either. Most patients do well on about 20 -25 mg
    of hydrocortisone a day. Our body’s make actually the equivalent to about 20-25
    mg of hydrocortisone. Another situation can be of course the lack of testosterone
    and estrogen both metalizing hormones and because the adrenal glands store both
    of these hormones, that when you remove the adrenals most patients feel much
    better when these hormones are replaced as well. Stabilizing
    hormones is an art…and has not been perfected because everyone is a little different. But these are things that perhaps you and
    your doctors can talk about and see if they will help you start losing weight
    and feeling even better.  Please keep in touch and let me know how you are doing. And remember if you would like Dr. Kelly and Dr. Barkhoudarian to look at your MRI scans to see if they think they see tumor please let me know. I’m happy to have them look over your scans.

  13. Hey Sharmyn thanks for your response I am now wondering if maybe I don’t take enough of my meds. I only take 5mg of each prednisone and fludrocortisone. I’m glad I get to chat with you because I saw the videos on youtube and it reminds me of me. I’m an italian girl with light hair and had the same problem as you but I was never a size 2 maybe an 8 now I’m a 16 if I am lucky more like an 18. you look awesome in the pics of you a huge difference from before. I too was once cute. I have my MRI appointment on 3/11/13. If they see nothing I woukd like to show them to your endo. thx ttys D.M.

  14. Hi Dawn,

    You may always email me at my personal email, [email protected], I receive a
    lot of emails so it’s best to just my 
    personal email. You can send your scans to my neurosurgeons at the Brain Tumor Center, at
    Saint John’s Health Center, in Santa Monica, CA. Dr. Kelly and Dr.
    Barkhoudarian, are happy to look at your scan. Just email when you have a copy
    of your MRI to send to them. As well they now have a way to down load your scan
    on your own computer and they can access them through I-cloud or something like
    that, I just learned about it briefly today so when you email me I will get
    more details about how you can do that instead of mailing everything.

    Sharmyn

     

  15. Hi,Great article. I have so many symptoms. That the dr said is not connected to the pituitary. My question is . I had this tumor for 12 years. I been on cabergoline since 2008. I was on it before just off and on it during my pregnacy. I was wanting to know if it is safe to be on it for so long. I was wanting to talk to my dr about taking me off of it for a little while. They take my prolactin level every year and i been stuck at  4 (blood work prolatin) What would you suggest?  My  endocrinologist  wanted me on the medcine till i am 45. Something about the change of life. I am 38 years old. Thank you for your help/

  16. Hi Sharymn I had been battling pit. disease for 20 years. It started when I was 22.  I found the meds untolerable – but stuck with them for several years and eventually I had to stop the one brand.  I tried 2 different meds – and felt so sick I had to quite.  By this time my tumor had been untreated for several years and it was taking a toll on my health.  I could barely function from the fatigue and side effects.  As I am from Canada – I flew to the Mayo Clinic to get a second opinion as.  The endo encouraged me to have the small tumor removed which was inside my pit. gland.  I have never felt good since. I have been to the Mayo Clinic several times and they say everything is ok, but truthfully I feel terrible. It has hit my moods drastically with depression, anxiety, and insomnia. I also notice I am shaky, feel short of breath, heart palips.  I also have mood swings.  I feel worse than I did before the surgery.  This has been going on for 2 years now.  I’m trying to see doctors in Canada – but it’s hard to get into specialists.  I’m trying everything but feel so hopeless.  I am unable to work right now, have lost interest in socialising with any of my friends, and have become quite dependent on my family.  None of this was me before.  I was so strong, independent and social.  Thank you for taking your time to read my message.  Sincerely,  Linda

  17. Just had my second tumor removed, would love to know what is causing these and if my cycle being disrupted had any connection to my ovarian cancer.Thanks for all you guys do to help educate and heal.

  18. Thank you for this article. I blew off so many ‘common’ ailments such as headaches & migraines. Minimized my sight problems by saying: “oh I just need glasses”.Super long story short, I was sitting in church after ‘blowing off’ my little ailments for a week, suddenly, I almost blacked out as if someone hit me in the head. My 60 second MRI in the emergency room revealed the tumor. My surgery went well, THANK GOD! My surgery was performed by a physician from The Mayo Clinic…world leaders in this type of tumor. Do your research if you are diagnosed and need a physician. Thank you again, so much for this article!

  19. This is great I found out recently that I have 2 pituitary tumours Prolactinoma. . Id loved to be able to send my scans ireally wood like a 2nd opinion ive beening wanting to change my endo so this would xx

  20. Hi Jade,We are more than happy to look at your scans and give you a second opinion. Dr. Daniel Kelly and Dr. Barkhoudarian do about 200 pituitary surgeries a year, they are amazing and always happy to look at scans and will give you a call to discuss it with you. You can mail everything directly to them and include a note briefly explaining your medical history. You don’t need to make it too long just brief and include any recent labs you have done. Make sure to include your contact information so they can contact you. There’s no charge for them to review your scans and give you a call. Brain Tumor Center2200 Santa Monica Blvd.Santa Monica, CA 90404Please let me know if you have any questions,Sharmyn

  21. Hi Linda,Sorry for the delay in responding to your note. I was in Rome at a international pituitary patient advocate board meeting and it’s been really crazy busy since I got back. I hate to hear you still are not feeling well. It’s difficult for me to make suggestions without talking to you, but usually I can help once I hear more details because in the past 13 years that I’ve been advocating for patients I can usually figure out the missing piece when patients are not recovering well. Please feel free to contact me on my personal email and I will give you my phone number and lets chat and see what we can figure out so you can start feeling better soon. [email protected] to hear from you soon,Sharmyn

  22. Brandi,Sorry to hear you had a recurrence and that you have also had to deal with cancer-man that sucks and really not fair. It’s hard to say why pituitary tumors grow back but they do some times. However in some cases the surgeon doesn’t actually get all the cells and/or leaves a bit of the tumor and the patient isn’t actually in remission after surgery and years later some times just months later the patient is told they have a recurrence. But it’s hard to say with your case what’s causing the tumor’s aggressive behavior. If you want Dr. Kelly and Dr. Barkhoudarian’s opinion please feel free to send them your scans and a brief medical history and they will tell you their expert opinion.www.brian-tumor.orgThis is our pituitary patient support group videos-it’s always good to hear from other patients and education is always good for everyone.http://www.youtube.com/user/Sharmyn411Please let me know if you have any questions-I’m always happy to try and help. Sharmyn

  23. Hi Tracy,Sorry for my delay in getting back to you, things have been really crazy this summer and I was in Rome at a Pituitary Advocat’e Board meeting when you wrote your note and I’m still trying to get caught up with every one I owe emails to, but anyhow about your prolactinoma. From what I understand about the medication you are on, people stay on it for many many years. However, one of my closest girlfriend had a prolactinoma and she decided it was better for her to just have the surgery and not take meds for the rest of her life. There are many patients that don’t do well on the medications. My girlfriend has been in remission now for 13 years and is doing fantastic. I don’t suggest having surgery lightly, it’s a very serious decision because it’s a very serious surgery; however, if you have a highly experienced pituitary surgeon then some times it’s just better to have surgery remove the tumor and go in remission so you don’t have to take meds forever. Patients really can’t stop meds as you have been wanting to do, most tumors will grow rapidly back. Most of the time symptoms increase and the biggest danger is the tumor growing quickly and can cause blindness and other major problems depending on the proximity of the tumor. You don’t have a lot of room up there and your pituitary gland is smack in between the two carotid arteries and optic nerves and tumors that grow close to those ares can’t be removed completely and usually need surgery and radiation and it can be a messy sistuation. As well, I don’t know what symptoms you are having but through the years I hear many doctors that are not highly experienced with pituitary tumors, tell their patients that high prolactin hormone doesn’t cause any symptoms but their wrong. Historically medical doctors were taught that since prolacting is a hormone we don’t replace that patients don’t have any effects other than over producing breast milk when they have high prolactin. But that’s not true, I know thousands of prolactin patients and they nearly all have the same complaints as any other pituitary patient has. They feel really quite bad, and ever worse sometimes with the meds. So I would get a second opinion if I were you and possibly consider surgery. If you would like to talk to me personally please contact me at my personal email, [email protected]‘s also important to know what your prolactin levels are and the size of the tumor and is the medication shrinking to tumor? I often see patients who have been on medication and they feel horrible and the tumor is still growing and the doctors keep increasing the dose of meds and the patient continues to feel bad. Then I see the size of the tumor and compare their labs and it’s determined that they don’t have a prolactinoma at all. They often have a tumor that is actually over producing another hormone but because of the size of the tumor it has caused the pituitary gland pressure which will release prolactin. But just because a patient has high prolacting doesn’t always mean the tumor is over producing the hormone. There are also tumors that duel produce a hormone, usually they over produce Prolacting and IGF-1. These tumors will not usually do well or the patient with the medications and need to be removed. Pituitary disease can be quite complicated and most doctors just don’t see enough patients to be experts.  Sharmyn 

  24. Thank you so much for this informative article.  On June 26th I was having stroke like symptoms at work and was rushed to the ER.  An MRI was done and they confirmed that it was not a stroke but did find a 6mm x 8mm cyst on my pituitary gland. The ER said its nothing to worry about, to have it checked again in 6 months to see if it grows,  and I was sent home.  Since that day I am having severe headaches that never go away.  My right leg and right arm will go numb and tingly which will last for days, I am now having issues with my blood pressure being high (have never had high blood pressure before) and I also have slurred/slow speech (have never had speech issues before).  Could these symptoms be related to the pituitary cyst?  Thank you for your time!

  25. Hi Lesli,I am sorry to hear you are having health issues. UGH! With what you have written, I would say yes, I suspect these issues could be directly related to the Rathke’s Cleft cyst. It’s very common to have the ER docs not to know much about the pituitary gland, I would suggest a pituitary neurosurgeon to take a look at your scans, as well I would send them a brief medical history of the symptoms you have expressed here. If you would like Dr. Kelly and Dr. Barkhoudarina (he co-authored this article with me) to take a look at  your scans etc, they will no problem. please email me at [email protected] Best regards,Sharmyn

  26. Rachel again.  If anyone just want to talk or need any information, please email me.  I also believe that networking is some of the best medicine possible!!email me at [email protected] or phone me at (928) 637-5788.

  27. Also, please don’t let doctors run you.  Get educated so that you know what is going on with your health care.  Thank you to the Dr’s of Norway and Canada.  They are supposed to be some of the best in the world and they remember the hypocratic oath.  Patient care is number 1 and we actually care and will try to save every patient.  Not give us more money under the table and we will save you!!  I wish the Dr’s I have seen were as confident as me.  That is half the battle in caring for patients.

  28. Dawn, definitely hope you get the treatment you need.  I have high acth levels too, so concerned that I will be in the same boat as you even if I’m lucky enough to get the treatment I need!!  I will pray for you.  Only a suggestion, but maybe another opinion would help. 

  29. Dawn, I’m no doctor but I’d make sure that I don’t have cushing’s syndrome with cushing’s disease before having lap band surgery, sounds like the medical community still needs to do more for you, but this is just my opinion.  I understand completely your frustration with the weight.  I have it too and it is almost impossible for me to live day to day in my condition.  But, I really want the medical community to do their job and treat me medically.  In the beginning, the medical community tried to get me to have lap band surgery too.  Many people I have met who had lap band surgery or gastrobypass surgery who had cushing’s were unhappy once treated that they had this surgery.

  30. Dawn, or a growth on a major organ that causing this increased ACTH production.  I would see another surgeon.  Please don’t take this as disrespect to any doctors, because I don’t have any.  This is a very difficult job, but I would recommend seeing another surgeon.  I believe what I read and I read that there are only 125 truly qualified surgeons who can perform pituitary surgeries in the country.  That is not very many.  Sometimes there is a growth next to the tumor and they must remove all of that too before you can be in remission from cushing’s.  Some dr’s as a result must remove part or all of your pituitary gland to cure you.  Just some food for thought.Rachel

  31. Hey Rachel How are you? My dr. wants me to have radiation since I had the surgery twice. I also had the gastric sleeve on 9/16. I feel ok I am glad I did it. hope all is well with you and it’s nice to hear from you ttys.

  32. Hi Rachel,

    It’s unfortunate you are
    having so much trouble getting a diagnosis. I agree the NIH is a wonderful
    option for some patients. Especially for those that fit the protocol required
    for their study purposes. It’s a shame to hear your disappointment with Dr.
    Kelly and Dr. Barkhoudarian, as we know not every doctor is for every patient
    and of course not every patient is a candidate for surgery. Not knowing the
    details of your case I can only speak from my experience with Dr. Kelly and Dr.
    Barkhoudarian and all the many, many patients that they have helped through the
    years, myself included. I know nothing about your case and I wish you to find the answers you need to getting the medical help you deserve. I have a much different perspective working closely
    with Dr. Kelly and his team and their patients but having facilitated the pituitary patient
    support group for over 13 years and knowing over a 1000 pituitary patients,
    I’ve learned that in some cases there is just no easy diagnosis. But thank
    goodness there are many patients that are in remission from Cushing’s and other
    pituitary tumors because of Dr. Kelly and Dr. Barhoudarian’s expertise and a
    small handful of other pituitary experts across the country. I sincerely wish there was
    an easy fix for all patients that suffer from pituitary tumors and/or hormonal
    disorders but unfortunately even with all the work we have done in the past
    decade we have only moved a golf-ball one inch closer to the sun and we must
    all keep moving forward with a common goal to help those patients affected with
    this insidious disease. 

    I wish you much luck in
    your persistent pursuit for the better quality of life that you so deserve.

    Many blessings,

    Sharmyn

  33. Hello, would like an advice please…!! in 2009 I discovered that I have a pituitary tumor. I undergone surgery and radio therapy, and still on treatment of hormonal pills. Last year after MRI, result show that it has reoccur. But, lately I have been getting headaches, pain around the eyes and ear pains, went to see a ENT Doctor, but saw nothing. this pain is rather annoying.  Can anyone advice please. thanx Pat 

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